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Waterford family fights for treatment, awareness for daughter with rare genetic disorder

Waterford family fights for treatment, awareness for daughter with rare genetic disorder
Photo: WDIV ClickOnDetroit (NBC) - Local News · view original

Experts say only about 150 people in the world are living with an ultra-rare genetic disorder called CACNA1E. One of those people is a 1-year-old girl living in Waterford. Her family says a lack of awareness makes finding treatment hard. They want to change that. In May, Local 4 reported on 1-yea...

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